Kinship, Connective Care, and Disability in Jordan

Temporalities of care shape the lives of families raising children with Down syndrome in Jordan. As they age, parents grapple with the future’s uncertainties and often circle back to questions of marriage. Marriage is a key symbol of adulthood, shaping futures and actualities of care by distributing gendered and generational labor among kin. Over time, children with Down syndrome depart from the normative trajectories embedded in these kinship- and marriage-based systems of care, leaving them stuck. While parents worry about care futures, they and their grown children contend with constricting opportunities in the present.